Comments on: Fibromyalgia: A New Test Leads To A Cause And Maybe A Cure

By: frankcook

frankcook — Wed, 24 Jun 2009 18:35:28 +0000

I am writing to you from the Pacific Northwest Foundation about a case study that may be of interest to your concerns regarding fibromyalgia. While this was not a study undertaken by the Foundation, it was a case with which we have had access to in virtually every detail. This includes the chart notes (with the patient’s approval) as well as the observations and insights of the patient’s health care provider.

The case involves an adult female who had been disabled for eight years with diagnosed fibromyalgia. Within four months of treatment, she was able to backpack, regularly work a full day and have little or no pain.

As with all our studies, it is our hope to stimulate additional efforts to determine if these results were an aberration or have wider implications. To this end, we wanted to make you aware of the cast study (which can be found online at http://pnf.org/html/fibromyalgia.html), in the hope that it might prove useful as a starting point for research within your organization.

Thanks and kind regards,

Frank Cook
Pacific Northwest Foundation

By: Rev. Bill Paldino

Rev. Bill Paldino — Sun, 08 Feb 2009 03:36:25 +0000

This is more good news!!
I have suffered from fibromyalgia for over 5 years and had a hard time finding out why I was suffering and then getting a doctor to care after I was diagnosed. I had some friends and acquaintances who did not, or do not, understand and because of all the negative attention the disease has received it is hard for someone who suffers to deal with it. So many ads that claim you just need a different diet, vitamin or claim it is all in your head.

This is great news for sufferers. If they work together with the information they’ve found here in the US; I believe they should be able to eventually help more people.

Here is a TEST for fibromyalgia that has been imporved in many other countries but still waiting for FDA approval in the US.

http://www.autoimmune.com/FibromTest.html

I think together with the study above and this study they may be able to come to some conclusion of cause or treatment soon.

By: James Hubbard, M.D., M.P.H.

James Hubbard, M.D., M.P.H. — Mon, 03 Nov 2008 19:45:10 +0000

Very interesting info. Certainly the physical exam testing we have now is unreliable, at best.

Of course, these new findings need more study, but a good beginning.

Thanks

By: FatFighter

FatFighter — Mon, 03 Nov 2008 18:56:47 +0000

I just wrote up a summary of this study for a news site I freelance for and found it very interesting. I am glad that it shows fibromyalgia is a “real” disease – I have several friends who have it.

By: monica

monica — Mon, 03 Nov 2008 17:11:57 +0000

I recently attended a meeting of the UK’s Fibromyalgia Association – all it takes is meeting these people to realize that the pain they experience is real. This is good news for them, I only hope that it gets the news coverage it deserves.